About the Organisation

TSC (Tuberous Sclerosis Complex) is a rare genetic condition that causes tumours to grow in major organs of the body. Signs and symptoms often change over a person’s lifetime and it affects more than 2,000 people in Australia and thousands more families and friends.

TSA (Tuberous Sclerosis Australia) is the only charity in Australia supporting people with TSC (Tuberous Sclerosis Complex). TSA is dedicated to helping create a better life and more hopeful future for everyone in Australia affected by TSC by providing knowledge, support and connection.

We directly support people affected by TSC and create a Community of people facing similar challenges who can support and learn from one another. We also provide people living with TSC with connections to expert health care professionals and relevant services.

We raise awareness of TSC and global research and advocate on issues such as access to health care and new treatments. A trusted expert, we are the go-to resource for information, advice and support for anyone in Australia affected by TSC.

TSA is a small but mighty organisation with three part-time staff and a voluntary Management Committee of six to eight people.

About the role

We have two vacancies on our Committee, one of which has additional responsibilities as Treasurer. For the Treasurer role, it is a hands-on position, which involves working closely with our CEO, our outsourced bookkeeping/accounting provider and as a member of our Investment Sub-committee. As a committee member, you will also fully participate in the governance, strategy setting and monitoring of TSA.

Responsibilities as Treasurer

• Load invoices to finance system (Xero)
• Approval and payment of expenses
• Management of all payroll functions including fortnightly payments
• Administrator of banking systems and ensuring bank and cash management controls are adhered to
• Month end data reporting
• Year end financial statement treasurer report and management of external auditor
• Liaise with outsourced bookkeeping provider and TSA staff on finance matters
• Provide liquidity and investment updates to the Management Committee
• With one other Committee Member, be a member of the Investments Subcommittee, to monitor TSA’s investments (externally managed)

We estimate the time required for the unique Treasurer function is 2 hours per week.

Responsibilities as Committee Member (both roles)

• Participating in Committee Meetings (the Committee usually meets 4 times a year on a Saturday for up to 3 hours via video conference).
• Contributing to the setting of organisational strategy, and regular monitoring in committee meetings of TSA’s progress against its strategy and operating plan

Skills and experience

Treasurer:

• Finance skills, you may hold formal finance qualifications
• Willingness to be hands on with the finance system for submitting and approving payroll and accounts payable

Committee Member (both roles):

While we are interested in any skills and experience you have that you think may be relevant and beneficial, skills we are interested in include:

• Previous experience with committees/boards
• Fundraising (particularly major donors, corporate partnerships)
• Digital customer engagement (particularly with a linkage to fundraising -- you can see that fundraising is very important to us!)
• IT
• Government
• Health sector

None of these are "must haves", we are also interested in your passion and enthusiasm to be part of the team setting and driving the strategy of TSA.

  For enquiries, please contact Michael Jones, President TSA at [email protected] using the subject line: Committee Members x2 enquiry via EthicalJobs or on 0401 694 549.