This is a truly unique opportunity to shape a better future for children and young adults with Prader-Willi Syndrome, a debilitating and painful genetic condition. Working directly with our extremely supportive CEO, our brilliant and collaborative Research Director and our highly engaged board, you make our organisation hum.

You will be supported every step of the way in this role. We are looking for someone who is comfortable making decisions and knows when to escalate. It is essential that you can adapt your communication style to different audiences and possess business acumen.

The culture of PWRFA is quite special. It is a place where people focus on the mission, work hard and care about each other. There is a strong commitment to ensuring that lives are improved for people with PWS – we know this is possible and we are working hard to connect scientists, families and funds to make sure this happens. It is a start-up environment; it is essential to work smart and manage resources with the utmost care.

PWRFA is a small, start-up health and medical research foundation focused on driving life-changing treatments for the rare, genetic condition Prader-Willi Syndrome. We are pursuing the ideal treatment targeting the genetic underpinnings of the condition whilst concurrently working on interventions to improve quality of life and healthcare now. The Prader-Willi Research Foundation Australia is governed by a voluntary Board of Directors and is a registered health promotion charity.

THE ROLE

In this PART TIME role, you will enjoy a diverse range of duties:

• Board Support and CEO assistance
• Marketing and Communications execution & coordination
• Fundraising and Campaigns execution & coordination
• Team & Org Operations
• Event management oversight & coordination
• Working with third party suppliers & volunteers

Benefits

• Fully remote and flexible role
• Paid training/education for role relevant courses
• Salary packaging
• Mentoring from the Board and CEO
• Potential for progression as the Foundation grows
• Extremely collegiate and supportive workplace