CHARGE Syndrome Australasia was established in 1994 and is the only volunteer not-for-profit support group dedicated to improving the lives of individuals with CHARGE syndrome in Australasia.

CHARGE syndrome is a complex syndrome of multi sensory impairments. Individuals have impaired hearing, vision, smell, taste, touch, proprioception and inner ear balance. Multiple disciplines are involved long term in the lives of these individuals; from medical intervention to communication strategies, sensory integration, behaviour management, therapy and education support. Unfortunately for families, many of our health and educational professionals do not fully understand CHARGE syndrome and the complexities of multi sensory impairment. 

We are calling for nominations of up to nine Director positions on the Board. Current Directors whose elected term expires in November 2024 can also nominate for election. Directors are appointed by the members of CSA, as representatives to lead and govern the organisation.

The Board is responsible for managing and directing the activities of the organisation to deliver on its strategic initiatives through the provision of strong governance and agile decision making. Board members are from all states and territories of Australia and New Zealand.

Board Nominees will have sound personal attributes and professional skills relevant to the role, as well as the time to commit to Board and Committee meetings, training and other Board related activities as required.

This election we are looking for people with skills and experience in any of these priority areas:

• Accounting & Finance
• NFP strategy
• Business development 
• Fundraising
• Communications (digital marketing & website management), community and stakeholder engagement

To nominate yourself or someone else, follow these steps:

1. Read our CSA strategy for 2022 to 2025
2. Take a look at the position description for a Director
3. Click the "Apply Now" button and complete the nomination form

Need help with any of the nomination documents?

Please contact [email protected] using the subject line: Board Directors (Voluntary) - Remote / Work from Home enquiry via EthicalJobs.

Annual General Meeting (AGM)

Newly appointed Directors will take office at the AGM of CHARGE Syndrome Australasia on Tuesday 26 November 2024, 7:00pm AEST Online.

Register for the AGM on zoom

A position description is attached.