About Us

The MSBase Foundation is an independent not-for-profit organisation that owns and operates the MSBase Registry - the largest online international repository of Multiple Sclerosis patient data, launched in 2004.

‘MSBase’ provides a global governance framework, database tools, and research support to enable worldwide collaborative outcomes and epidemiologic research for the benefit of people with multiple sclerosis (MS) and other neuro-immunological diseases (NIDs).

Our global membership base includes practicing neurologists and their healthcare teams worldwide, who seek membership to collect, track and share patient outcomes data and engage in international, collaborative research to improve understanding and treatment outcomes for patients. The MSBase Foundation launched a new disease registry in 2021 dedicated to a rare chronic autoimmune disorder, Myasthenia Gravis.

‘MGBase’ provides the same infrastructure as MSBase and similarly aims to improve outcomes for patients with MG by advancing collaborative research. The MSBase Foundation is looking for an enthusiastic, well-organised Membership & Operations Coordinator to join our supportive and collaborative team in a parental leave 12-month full-time contract position.  

About the role

The MSBase Membership & Operations Coordinator is responsible for leading the member services of the MSBase and MGBase registry platforms and reports to the MSBase Head of Business and Finance. The key duties of this role will cover three main areas:

Msbase And Mgbase Membership Management

• Manage new membership requests
• Support new and existing members with their review and execution of MSBase Foundation governance documents
• Provide timely first-line membership support and triage requests
• Work closely with the MSBase IT team on technical membership support

MGBase Support

• Plan, host and attend internal and international committee meetings and provide full administrative support including the creation/distribution of agenda and meeting files
• Document and distribute minutes and action lists
• Provide administrative support for a new MGBase Pregnancy Study.

Operational Support

• Maintain the MSBase publications list
• Update content on the MSBase and MGBase registry websites
• Assist with the coordination of the MSBase Foundation’s attendance at the annual international European MS conference (ECTRIMS), including meeting planning and bookings
• Assist with the development of promotional collateral

Some after-work hours will be required to participate in evening teleconferences, in line with our global membership base. 

About you

We are seeking someone who meets the following selection criteria:

Essential

• Proven track record in administration and operational coordination
• Experience in meeting coordination
• Excellent communication and interpersonal skills with the ability to build professional relationships
• Well-developed organisational and time management skills
• Highly proficient in using Microsoft Office; adept at learning new software applications
• Excellent attention to detail and commitment to producing high quality work
• Willingness to learn, show initiative and exercise judgement

Desirable

• Experience working in the not-for-profit sector
• Experience in health research administration
• Understanding of general data protection regulations

Benefits on offer

• Join a successful, meaningful organisation through a unique and rewarding position
• Flexible working conditions enabling office hours and work from home arrangements
• Opportunities for ongoing learning & development
• Highly collaborative and respectful workplace
• Salary packaging benefits

next steps

If this unique position is of interest please contact MSBase Head of Operations Charlotte Sartori at [email protected] for a confidential conversation about the role, using the subject line: Membership & Operations Coordinator enquiry via EthicalJobs.