This is an incredible opportunity for a passionate, dynamic and entrepreneurial fundraiser with a background in building and driving philanthropy programs.

• Australia wide considered; home based
• Full time and part time considered

IMPACT OF THE ORGANISATION

Epidermolysis Bullosa (EB) attacks the body’s largest organ — skin — and not just the skin we see but also the connective tissue and organs inside of us. It results in wounds that never heal, disfigurement, blisters, bleeding, and ever-present pain.

Founded by a dedicated group of parents along with Jill and Eddie Vedder (Pearl Jam), EB Research Partnership is the largest non-profit in the world dedicated to funding research to treat and cure Epidermolysis Bullosa (EB), a group of devastating and life-threatening genetic skin disorders that affect children from birth.

EB Research Partnership utilises an innovative business model of venture philanthropy; when EB Research Partnership makes a grant to a research project, any revenue from a commercially successful therapy or product is then directed back to the organisation to fund additional research.

EB Research Partnership have a plan to defeat EB. It’s a plan that not only promises to change the lives of families fighting this disease but also to change the way rare disease treatments are found.

Through tireless research, scientists have identified the mutation that leads to EB. They believe they know how to fix the problem. And they believe that this fix is applicable to many genetic diseases. But because most people have never heard of EB, a lack of funding holds back an end to this devastating condition.

The biggest obstacle to curing EB isn’t science - it’s funding, and this is your chance to be part of this incredible organisation, leading on fundraising for EB Research Partnership Australia.

Join them in their mission to treat and cure Epidermolysis Bullosa.

IMPACT YOU WILL HAVE IN THIS ROLE

Reporting to the global CEO, this is a unique opportunity to utilise your major gifts experience, your understanding of the philanthropy landscape across Australia, your networks and your fundraising passion to build a new fundraising program across Australia for this inspirational organisation who are funding research to treat and cure Epidermolysis Bullosa.

You will lead on the development and execution of a fundraising strategy across Australia with a focus on high value giving.

Working closely with the Australian board to identify, cultivate, solicit, and steward current and potential donors, you will focus on strengthening EB Research Partnership’s brand across Australia and build new revenue streams for the organisation that will contribute to the ongoing research to cure Epidermolysis Bullosa.

KEY RESPONSIBILITIES:

• Develop and implement an Australia wide strategic and comprehensive fundraising and marketing plan that ensures successful outcomes and meets both annual and long-term financial objectives
• Collaborate with the global CEO and Australian board to establish clear and ambitious goals for the Australian market with a focus on identifying new networks and building relationships with prospective donors
• Identify, cultivate, solicit, and steward current and potential major donors
• Develop a potential prospect pool of donors across Australia to include individual donors, PAFs, trusts and foundations and corporate foundations
• Manage the full cycle of the donor journey from prospect scoping and initial research through to making the ask and securing agreements
• Develop impactful funding proposals, individual cases for support and impact reports
• Build relationships with current and potential ambassadors to raise the profile of the organisation and advocate for EBRP and EB sufferers
• Support national EB Research Partnership Australia events with a focus on donor engagement
• Support marketing and brand activity across Australia
• Improve existing systems and processes to support increased development activities
• Use the CRM and data strategically to inform decisions, with a focus on increasing donor retention, uplifting engagement and managing the pipeline
• Provide regular budget updates and fundraising forecasting reports to the global CEO and the Australian board

SKILLS AND EXPERIENCE:

• Proven experience in major gifts fundraising with the ability to develop a national philanthropy strategy that focuses on developing a robust new pipeline of donors
• Experience and success securing high value gifts from individual donors and foundations
• Exceptional relationship development skills with a passion for building new networks with knowledge of Australia’s philanthropy landscape
• A successful history of securing major gifts in the five and six figure range with the ability to lead on the full donor cycle from prospect, cultivation, solicitation, closing, and stewardship
• Innovative, entrepreneurial, and strategic thinker who is passionate about building new fundraising programs
• Data driven and strong CRM experience with the ability to research, develop profiles, qualify prospects
• Outstanding written and verbal communication skills with the ability to build and grow relationships with new donors, ambassadors and families affected by EB
• A self-starter with high level networking, influencing and negotiating skills with an ambitious, curious, innovative and dynamic approach to fundraising
• Results driven with a background in working to and exceeding financial targets
• The ability to work autonomously, self-driven and highly motivated
• Experience engaging with and reporting into a board
• Able to travel across Australia when needed to meet with donors
• A genuine passion to join this incredible organisation and join them in their clear mission; to treat and cure Epidermolysis Bullosa

APPLICATIONS

Please direct all enquiries to Rosheen Singh at Impact Advising on [email protected], using the subject line: Head of Philanthropy - EB Research Partnership - Australia-wide / Remote / Work From Home enquiry via EthicalJobs.

Impact Advising is committed to creating diverse and inclusive work environments that reflect the rich tapestry of our communities. We believe that diversity enriches organisations and fosters innovation. We are dedicated to building workforces that are a representative of the diverse backgrounds, experiences, and perspectives of our society. We embrace diversity in all its forms, including but not limited to race, ethnicity, gender, age, sexual orientation, religion, disability, and cultural background.

We actively seek to foster inclusive workplaces where all employees can bring their whole selves to work, feel respected and valued, and have equal opportunities for growth and advancement. We are committed to providing a fair and unbiased recruitment process, and we strive to eliminate any barriers that may impede the inclusion and participation of underrepresented groups in workforces.