About the organisation

Muscular Dystrophy Australia (MDA) was founded in 1984 and is the national peak body for those living with neuromuscular disease (NMD) across Australia.

Our Mission is to provide practical support and hope to both the muscular dystrophy and other related neuromuscular disease communities. We are often the first point of call when someone receives their diagnosis. We provide a safe place for families and those living with NMD to turn to for advice, practical support, and a friendly ear.

MDA represents the needs of more than 40,000 people living with one of 60 different types of NMD, which affect muscle strength. The support and services we provide use evidence-based and consumer-informed approaches to optimise the lived experience of NMD.

Our team’s key strength is our expertise in all forms of neuromuscular disease. Over the years we have built up a rich database of referral information and well-established support groups.

The MDA funded research aims to stem disease progression and support innovative research projects that lead us to a cure. Together, we are a powerful force for people living with NMD.

With lived experience at the core of everything we do, MDA is working to deliver a brighter future to people living with NMD.

Is MND NMD?

Motor Nerone Disease (MND) is a type of NMD. What a difference one letter will make to 40,000 Australians when funding is prioritised across all NMD research.

The way we work at MDA

We are rebuilding. Our culture is poised as high performance with capacity/resource ratios in balance, we lean-in and are agile, respectful, compassionate and caring. As a team we are productive and quiet with the right balance of professionalism.

The MDA culture fosters a collaborative approach that is respectful and iterative, building upon ideas, thoughts and expertise to seek input to reach consensus. MDA leads with values embedded into our CARED model outlined in Appendix 1.

COURAGE – ADVOCACY – RESPECT – EXCELLENCE - DYNAMIC

These values are an integral part of our culture, brand and positioning, and inform our decisions and behaviours in our dealings internally within the organisation, and externally with all our stakeholders.

Purpose of the position

Reporting to the Client Services Manager and working closely with the Client Marketing Consultant and the overall MDA team, the Client Programs Coordinator identifies and develops programs to support people living with neuromuscular disease throughout Australia. The initial focus of the programs will be for children and young people living with NMD including the co-ordination of CampMDA. While this is a national role, the focus will be Victoria and South Australia in year one.

This role provides key internal services and expertise to build evidence-based client programs that can be scaled, are impactful and are on brand. Most importantly, the programs will be co-created with input from clients and families with lived experience of NMD and healthcare professionals.

Please review the Position description included.