Do you wish to support a small, but vibrant, philanthropic health organisation with your skills?

CHARGE Syndrome Australasia makes the CHARGE syndrome journey easier and simpler for families living with this complex and rare disease.

CHARGE Syndrome Australasia was established in 1994 and is the only volunteer not-for-profit support group dedicated to improving the lives of individuals with CHARGE syndrome in Australasia.

CHARGE syndrome is a complex syndrome of multi sensory impairments. Individuals have impaired hearing, vision, smell, taste, touch, proprioception and inner ear balance. Multiple disciplines are involved long term in the lives of these individuals; from medical intervention to communication strategies, sensory integration, behaviour management, therapy and education support. Unfortunately for families, many of our health and educational professionals do not fully understand CHARGE syndrome and the complexities of multi sensory impairment. 

About the Role

We are seeking experienced Board members with skills in any of these areas: finance audit, risk management, strategic planning, communications and marketing.

Commitment is for a 3 year term with an option for two more terms. This is a voluntary position. Meetings are held four times per year at mutually agreed times.

• Experience in financial accountability and fiduciary duties, comprehensive risk management and strategic planning.
• Experience working on a not for profit Board and qualifications (e.g., Australian Institute of Company Directors, ACP) is highly desirable.

Duties of the Board member

• Active participation in the decision-making process about governance, finance and strategic planning and ensuring objectives and goals are achieved.
• Ensure the Board functions within its legal and ethical responsibilities and has appropriate corporate governance structures in place.
• Review and endorse financial situation and monitor control and risk mitigations.
• Attend Board meetings (4 per year) and participate in committee meetings. 
• Foster relationships with external stakeholders, such as peak bodies, government, community leaders, researchers and others.

You will require:

• Current Police check

• Current Working with Children Check

Please view the Position Description here or attached below.